Thank you so much for your interest and support! CONTACT me in MP or via email at if you have ideas, recommendations, contacts or to get additional information (his medical file, more details on the leukemia, anything else…)
I believe that reaching as many people as we can will help us open new opportunities (physicians, clinical trials sponsor contact, research papers involving new treatment strategies…). REACT and SHARE this post to your network. Plus, his isolated extramedullary relapse is an exclusion criteria in many clinical trials. Navigating the clinical trials world takes time and targeting the most relevant treatment is complicated. The last option for him is to enter an appropriate Phase 1/2 clinical trial ASAP.ĭespite one month of research contacting some experts and hospitals around the world, we still haven’t found him a slot in a clinical trial that could fit.
Unfortunately, his medical team in Lyon has no existing cure left to try. no leukemia in bone marrow, facial paralysis, cutaneous lesions). After 4 rounds of chemo and a bone marrow transplant, the disease relapsed in an extramedullary form only (i.e.
His leukemia type is very rare and aggressive: Acute Myeloid Leukemia (AML) with complex karyotype & TP53 mutation. My little brother, Nicolas, is 28 years old and fighting against #leukemia since February 2022. I have been struggling with myself on whether I should share it here or not, but I truly believe that it could end in finding him a new treatment option 💪 What do you want for Christmas? Well, I want to find a CLINICAL TRIAL for my little brother.
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